They were playing so…


They were playing so well together in Jonnys room. It was quiet. It was TOO quiet. 🙄🤦‍♂️

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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So Jonah recently had a birthday… (video)


So Jonah recently had a birthday and here is one of his favorite presents. It’s called "Dizzy Fun Land" (from Learning…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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