Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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We had a Christmas p…


We had a Christmas pot luck at our house last night. There were 8 other kids that came over. In the past, when that…

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A tale of sleep


Last night he had a late nap (almost 3 hours) and I gave him melatonin to go to sleep at bed time. It worked okay. He…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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