This kid……


This kid... ...waltzed into our room at 4:30am belting out songs from the Greatest Showman, climbed into bed with us,…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Guess who…


Guess who dressed Jonny today (Red shirt & warm-up pants)?

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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