Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Hey guys! So we trie…


Hey guys! So we tried a weighted blanket last night for Jojobee and he LOVED it. He even slept from 10-6:30! We got it…

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A meltdown – Still a victory to me.


If Jojo was a bit older, or a bit stronger, I'd be having to buy a new computer. He was upset because I wouldn't let…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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