Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

Read More

Working for Sleep


So Jonny is a month and a day old today! Sooooo big. He now weighs 9lbs 3oz, which means he's gained a whole pound…

Read More

When Jonny was in third grade,…


When Jonny was in third grade, his teacher told us our best option to meet Jonny’s educational needs was to transfer…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center