Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Sitting in the waiti…


Sitting in the waiting room waiting to discuss Jonny’s results. Please send prayers, good thoughts, or good vibes.…

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Jonah ROCKED his plane flight!


Jonah ROCKED his plane flight! No Meds, not even melatonin. NOT ONE MELTDOWN. The flight was 6 hours and the plane left…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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