Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

Read More

Just got his hair cut…


Just got his haircut. It is the 2nd time in a row we have not had a single incident and she even used SCISSORS this…

Read More

Jonny’s Surgery


It’s 6:00 Tuesday. Jonny’s surgery got pushed back from 1:00 to 5:00. He has been in surgery almost an hour. Basically…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center