Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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New Pics & update


We are counting down the days until Jonny finally gets his cast off. December 19th at 1:20. T-minus 12 days and his 12…

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The journey from “ca…


The journey from “can’t yet” to “never will” is a tough road to take. But sometimes that road can change our…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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