Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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(I wrote this today……


(I wrote this today… based on ACTUAL events) I saw Daddy laying down in bed… Sometimes Daddy lays down in bed and it’s…

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I set up a “sick sta…


I set up a “sick station” for Jonny on our couch complete with a “breakfast in bed” tray to help him recover from his…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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