Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Why do I do it?


So I’ve been in this for a few months now. When I started this page, my hope was that I could find support from…

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“Jojo thirsty.”…


“Jojo thirsty.” I have to take a moment to reflect on our progress for the times when I feel we have plateaued or…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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