4:45am…


4:45am 2.5 hours of sleep so far. Since 10:30pm So far I’ve been on the floorof his room, my bed, back to the floor in…

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Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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So this is a thing n…


So this is a thing now. Jonah wants to ride his bike at every waking minute of the day. I now have to chase him around…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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