We’ve hit a mileston…


We’ve hit a milestone and I didn’t even realize it... I took the boys to McDonalds for lunch today. Jonny’s still a bit…

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I think one of the hardest thi…


I think one of the hardest things about this journey is the developmental uncertainty. Here’s what I mean by that. When…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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