Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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You just get on with it ….


You just get on with it . People tell me I must be used to being tired I am used to it yes but you still feel it Things…

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Jonah ROCKED his plane flight!


Jonah ROCKED his plane flight! No Meds, not even melatonin. NOT ONE MELTDOWN. The flight was 6 hours and the plane left…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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