Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several ā€œmarkersā€ for Kabuki Syndrome and…

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Celebrating a conver…


Celebrating a conversation I just had with Jojo. (Yes. A CONVERSATION!) Me: ā€œJojo, do you want some Mac-n-cheese?ā€ā€¦

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So Jojo was up at 3a…


So Jojo was up at 3am this morning. He got up, wandered into our room and climbed into bed with us. He has learned that…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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