Jonah’s Diagnosis – Two Perspectives


Life is hard sometimes. Life is also unfair. That is not an observation. It is a fact. In this life, we will lose loved…

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Took jojo to his fav…


Took jojo to his favorite outdoor spot today. It’s been a difficult week and I find that just walking the beach, even…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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