Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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He’s lucky he’s so d…


He’s lucky he’s so darn cute. “Last morning” (to use a term Jonny coined), Jonah strolled into our bed about 3am and…

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Honor Where Honor is Due


This blog is long overdue, but I thought I'd stop and say thank you to everyone who has helped us along the way. THANK…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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