I’ve had to learn to focus on the here and now.
I find If I focus on the “big picture,” life will quickly seem overwhelming…. between the fight for services, coverage for services, worrying about when services will end…how he is treated when I am not around, bullying, health, development, self-sufficiency, nutrition…
And then just day to day things like handling meltdowns and aggression, broken tablets, chasing him around 24/7 making sure he is both happy, not hurting others, and not eloping. Keeping routines, while trying to get him to try new things…trying to get him to sleep. Getting more than a few hours of sleep nightly ourselves… it all becomes second-nature. A new normal.
People ask how we’re doing and I’ll answer “we are fine.”
It’s easier than explaining. Yes, certainly, we have daily challenges that others might consider “overwhelming.”
But that’s just life. And we have learned how to adjust.
“Fine” can mean so many different things… but sometimes, it’s just the easiest explanation.