Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

Read More

Nail Clippers to a toddler


You guys. Jonah just let me clip his toe nails! This is huge. HUGE! We usually have to do that while he sleeps... or he…

Read More

Jonny, my oldest doe…


Jonny, my oldest does not have any specific diagnosis. The geneticist is convinced there IS a genetic component…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center