Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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I try to focus on th…


I try to focus on the positives, but every so often, when I get that rare moment to yourself, I start (over)thinking…

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What can you do when…


What can you do when they take late naps? I tried to keep him up. I really did. ...but Jonah had a busy weekend. He is…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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