Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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“He’s still asleep. “


Hows your day going? I'm writing this at about 7am, waiting for Jojo to wake up... Yesterday, Jojo needed to leave…

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Today Was a Good Day


To the judgemental onlookers... We are in a new place in a large arena. My son has never been here. In a setting with…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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