Way to go, Jojo!


A year ago, Jojo had one word he could communicate verbally ("done"). We have been working on imitation for the last…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Today we ate at a “sit-down” restaurant.


Today we ate at a "sit-down" restaurant. We ALL ate. It's Friday and I was feeling adventurous. So I chose our favorite…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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