Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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I think one of the hardest thi…


I think one of the hardest things about this journey is the developmental uncertainty. Here’s what I mean by that. When…

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We were an hour late…


We were an hour late for school because Jonah had a meltdown. This time it was because Jojo didn't want to have his…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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