Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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New Pics & update


We are counting down the days until Jonny finally gets his cast off. December 19th at 1:20. T-minus 12 days and his 12…

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What’s it like paren…


What’s it like parenting Jonah? Let me give you a small sample. Okay. So, Jonah made “this” this morning. He plugged up…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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