Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Looking on the bright side…


Looking on the bright side… when up with a sick Jojo, it’s the first time he has actually thrown up in the toilet… 🤢🤮…

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Playing Catch with my Ausome Son (video)


This hits home for me. Just before Jonah was officially dıagnosed, I was in a very "dark" place emotionally. I grew…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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