Five years ago today…


Five years ago today… I still get a little pit in my stomach remembering the anticipation of “diagnosis day.” Wow… how…

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Just got his hair cut…


Just got his haircut. It is the 2nd time in a row we have not had a single incident and she even used SCISSORS this…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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