Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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When Jonny was young…


When Jonny was younger, he would say the funniest things. If he didn’t quite have the vocabulary to describe what he…

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Need a 2nd opinion…or 3rd?


Jonny has been a little more fussy than usual for no particular reason and we noticed a slight discoloration on his…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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