Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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“Tentative Arrangements”


Yes. This. I don’t know how many times I’ve had to make “tentative arrangements” because we simply don’t know how Jojo…

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How do you take care of yourself?


How do you take care of yourself? Self-care is super important when you are a care-giver. I'm sure you've heard the…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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