Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonny’s New Do…


Jonny’s currently sitting on my lap so updates to come later but for now… Enjoy………

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Crazy Kid!


Hi I’m Jonny. I can now pound my toys on the floor (…walls, the desk, daddy’s head) to listen to what sound it makes. I…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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