Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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“Tentative Arrangements”


Yes. This. I don’t know how many times I’ve had to make “tentative arrangements” because we simply don’t know how Jojo…

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Yes! this! So, Jona…


Yes! this! So, Jonah “knows words,” but conversationally, he has a very limited vocabulary. Most of his conversations…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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