Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

Read More

I always cringe when…


I always cringe when I see a text from Jojo’s teacher. It usually means something really good or REALLY BAD happened at…

Read More

So this is our curre…


So this is our current issue with Jonny, who is turning 14 this month. Jonny was born with several medical issues. He…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center