I got around 3 or so…


I got around 3 or so hours of sleep last night. Nothing new in particular for Jojo. Just the usual song and dance...…

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Need a 2nd opinion…or 3rd?


Jonny has been a little more fussy than usual for no particular reason and we noticed a slight discoloration on his…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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