Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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I taught Jonah a new song… (video)


I taught Jonah a new song. He’s added his own twist on it. I think it is a right winner! Original Facebook……

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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