Part of the reason I…


Part of the reason I run this page is so I can tell you all about our journey. If you want to know anything about it,…

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Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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I’m incredibly proud right now.


I'm incredibly proud right now. Most of you don't know, but 'Mama,' works as an RN and nurse manager in the intensive…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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