Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonah is fiercely independent…


Jonah is fiercely independent. If he CAN do it himself, he WILL do it himself. That's been true since he was an infant.…

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I don’t want to say …


I don’t want to say we’re making sleep progress for fear of jinxing it but... Last night, I heard Jonah’s door open and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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