Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Here, Jonah is eatin…


Here, Jonah is eating a peanut butter and jelly sandwich. This is special for 2 reasons. 1) Jonah has never had peanut…

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Working for Sleep


So Jonny is a month and a day old today! Sooooo big. He now weighs 9lbs 3oz, which means he's gained a whole pound…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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