Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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This kid……


This kid... Slept all night... ...in his OWN BED! it happens so infrequently (3ish times a year MAYBE) I feel like I…

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“LOOK WHAT I CAN DO!”


This morning, Jonah came up to me and pulled me toward his dismantled marble run toy. He had "that smile." You know the…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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