Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Anyone recognize this?


Anyone recognize this? This is “Bedtime.” Every. Night. I didn’t even try to sleep in my bed last night. FYI, when you…

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I’m grateful for a family who “gets it.”


I'm grateful for a family who "gets it." Who understands that my child is 'my child,' and that I know him better than…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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