Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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On paper, those who …


On paper, those who don’t know Jonny would say that he is “behind.” That he is not performing at “grade-level.” That…

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I’ve Been There


It's night time. He had a late nap. That's never a good sign. But tonight I'm lucky. The melatonin worked this time. So…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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