Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Jonah at the ocean (video)


So proud of Jojobee! The first day we came to the beach, he ran straight at the ocean and a wave put him on his back…

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“What’s Russell saying?”…


“What’s Russell saying?” Jonah will ask us this probably 50 times a day. Russell and Jonah have grown up together. We…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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