Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Any of you have litt…


Any of you have little artists out there? Let’s see some of their work!! Jonah has recently rediscovered his joy of…

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For those of us with nonverbal…


For those of us with nonverbal/pre-verbal kiddos... “Hearing” our children requires so much more than just……

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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