Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

Read More

Jojo let mama into his room…


Jojo let mama into his room for our bedtime routine. This is rare. Usually he pushes her out. But Mama lets Jojo play…

Read More

What is an ‘Ausome’ …


What is an 'Ausome' home? This... Love this from A Piece of Oakley In our home... ❤️💙💛

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center