Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Wise words from A Pi…


Wise words from A Piece of Oakley "Don't you ever, EVER lose hope." Here's to 2019! I’ve had this page for about two…

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Crazy Kid!


Hi I’m Jonny. I can now pound my toys on the floor (…walls, the desk, daddy’s head) to listen to what sound it makes. I…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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