Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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When communication i…


When communication is difficult, just knowing that you are happy means more than the world to me. Just seeing the joy…

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“LOOK WHAT I CAN DO!”


This morning, Jonah came up to me and pulled me toward his dismantled marble run toy. He had "that smile." You know the…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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