So this is our curre…


So this is our current issue with Jonny, who is turning 14 this month. Jonny was born with several medical issues. He…

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So this is quintessential Jonah.(video)


So this is quintessential Jonah. He loves to laugh and he loves to be silly and make other people laugh. Just before I…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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