Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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A “work-in-progress”


Mama has had the week off of work, which has been nice, but also is not part of our routine (Mama being home on school…

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How far have we come??…


How far have we come?? Jonny just walked home from school by himself a mile and a half away. First time he’s ever done…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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