Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several ā€œmarkersā€ for Kabuki Syndrome and…

Read More

You just get on with it ….


You just get on with it . People tell me I must be used to being tired I am used to it yes but you still feel it Things…

Read More

He ate new food in a new location! (video)


We took Jonah to eat at a fancy restaurant. It was attached to our hotel so it wouldn't be too hard to get him out of…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center