Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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“What will happen when I’m gone?”


"What will happen when I'm gone?" Our goal is for them to learn to live independently. To support themselves. I suppose…

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Jonny, my oldest doe…


Jonny, my oldest does not have any specific diagnosis. The geneticist is convinced there IS a genetic component…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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