Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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#tbt [May 1, 2014. J…


#tbt [May 1, 2014. Jonny was 5 years old.] Nothing makes a parent more proud than when they see the fruits of years of…

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I think one of the hardest thi…


I think one of the hardest things about this journey is the developmental uncertainty. Here’s what I mean by that. When…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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