Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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I have been called a…


I have been called a “saint,” for the way I “parent” my kids... or maybe because of the way my kids were born. People…

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For those who don’t …


For those who don't know, Mama is an RN and an ICU nurse manager working out on the front lines of this 'thing.' So, to…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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