Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Jonny’s surgery


We just found out that Jonny's surgery to repair the partial cleft in his soft palate and have tubes inserted in his…

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Jonah will turn all …


Jonah will turn all the lights in the house out when it gets dark. It could be an avoidance technique? It could be his…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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